Thought of you while reading this David, glad you saw it. Something I took from your recent post was how disabilities “higher on the hierarchy” tend to have less time to work with overall. This piece felt like an evolution on that idea for me. Grateful for others sharing their perspectives and expanding mine.
As someone with cerebral palsy,long COVID and ADHD, I totally feel this. My brain goes a million miles an hour while my body works overtime to keep up until I crash.
“Disability routinely disrupts and forecloses the normative development timeline. We experience our education interrupted, our careers fragmented, and our relationships strained by the unpredictability of our bodies and minds. The questions of milestones, such as marriage and children, also become complicated or closed. Those milestones arrive late, in the wrong order, or are replaced by others entirely.”
I relate to this a lot. The phrase that “we all have the same amount of hours in a day” really aggravates me. I actually just started writing an essay on this very topic. I’m homebound, so my sense of time has become skewed because a large part of how we map time is from milestones or key details that happen (when you bought a house, started a new job, got married, traveled to a destination, had a rough breakup, whatever). Without those notches, time can feel like an endless continuum where I feel disconnected from the timeline of my peers. I find myself thinking of someone my own age “you have 3 kids?!” Knowing full well we are mid thirties lol, because time feels a bit “stuck” in my world.
Loved reading this!
Thank you!
Thought of you while reading this David, glad you saw it. Something I took from your recent post was how disabilities “higher on the hierarchy” tend to have less time to work with overall. This piece felt like an evolution on that idea for me. Grateful for others sharing their perspectives and expanding mine.
Thank you, Lisa. Me too! I really enjoyed reading this.
Thank you for this. So much.
I'm from Phoenix and got a different first impression! But I got you I'm
With you now and I love this
This feels enormously validating to read. Thank you for this thought-provoking essay.
Thank you for this, Jamie! Really well done.
Great description
Thank you!
As someone with cerebral palsy,long COVID and ADHD, I totally feel this. My brain goes a million miles an hour while my body works overtime to keep up until I crash.
“Disability routinely disrupts and forecloses the normative development timeline. We experience our education interrupted, our careers fragmented, and our relationships strained by the unpredictability of our bodies and minds. The questions of milestones, such as marriage and children, also become complicated or closed. Those milestones arrive late, in the wrong order, or are replaced by others entirely.”
I relate to this a lot. The phrase that “we all have the same amount of hours in a day” really aggravates me. I actually just started writing an essay on this very topic. I’m homebound, so my sense of time has become skewed because a large part of how we map time is from milestones or key details that happen (when you bought a house, started a new job, got married, traveled to a destination, had a rough breakup, whatever). Without those notches, time can feel like an endless continuum where I feel disconnected from the timeline of my peers. I find myself thinking of someone my own age “you have 3 kids?!” Knowing full well we are mid thirties lol, because time feels a bit “stuck” in my world.
I know exactly what you mean - and thank you